Of course the day we had to drive to Akron, it snowed for the first time. Really it wasn't that bad. It's Ohio, so we had a little snow then a little sun, all the way to Akron. Out my huge window at The Cooper Cancer Center we could watch while I was getting my gogo juice.
Well, I gained about 9 lbs. All in my face and upper abdomen. they have a life of there own. LOL Not really worried about it. I know it is the Prednisone and it will eventually go away..... Same routine today. Received Tylenol, Zofran, and Cytoxan along with a bag of vodka---I mean dextrose. No problems, just was EXTRA tired after infusion. It was hard to keep my eyes open. Thank you Tara and Maribeth for sitting with me and making the time pass faster.
After infusion I went to see my favorite Doctor. Dr. Anderson. He is the nicest, smartest doctor around. While talking to him, he could tell I was buzzed from the Prednisone. lol He is decreasing my Prednisone by 20mgs a day. YEAH! Hopefully by mid Feb. I will be off Prednisone. I will still continue Cytoxan infusions for the full 6 months maybe longer. BUT no longer than one year. Then hopefully I will be in remission. All my symptoms are caused by Prednisone. With decrease in dose it should be interesting to see how that changes. Diet is good. Spoke with dietitian. Glucose up, but that is probably from Prednisone. Plus, I might try tofu and chia seeds! Even though I was told for 3 years not to eat wheat, nuts, beans, (fiber) because of my kidneys, NOW they tell me that's what I should be eating.
I can't get a Free Wig. :( Since I don't have cancer, they can't give me one. That's ok. I haven't lost my hair yet and it hasn't started to thin either. Doctor said I may not.
My next infusion in Friday Dec 13.
On our way home, MB and I stopped at my moms. Bill and Kendall stopped by on there way home. Of course my mom had another laundry basket, plus of food and goodies. Thank you!
Also Thank you Tara for the bag full of yarn, heart pin, baby oil gel and yummy cookies.
The last picture below is my exercise for now. Need to move the fluids inside. Yes that is my mom's shake weight. She finally got someone to take it home. I do it when no one is around!
Hugs to all and thanks for reading.
No comments:
Post a Comment