Blah!

Not sure how I'm feeling the last couple of days. Last week was a big week. Xavier had his surgery and is doing Great! He has a cast on and had to have pins put in his thumb, but he is doing wonderful. Three more weeks and the cast is off. :) I was in C-bus for 4 days. Any other time it would have been a breeze. This time it was good, but it caught up with me...... DAMN!!!!! On Saturday I got to see my nephew Stephen I haven't seen in about 10 years!!!!!! What a nice visit we had. I hope we didn't overwhelm him too much! Thank you Paula and Brad for hosting all of us AGAIN!!! Hugs! I also got my hair cut short. The texture has changed, but it hasn't fallen out.(yet?)

I have my third infusion tomorrow. Not sure if I'm feeling yucky because it's time for next infusion or something else. Plus my body is aching MORE! Not fun. Thinking it might be the 20mg I decreased my Prednisone has caught up with me?? Back tightness (SOB), upper abdomen heaviness increase and lower back heaviness increased. Ambulation hurts. My moon face (head) is heavy and hard to hold up at times. Eye lids heavy. Still smell metal smell, bowels are crazy, BP and pulse going up and down. I've noticed some bruising (bld count?) Always tired.
REMEMBER - I am writing all this down to hopefully help someone else, not for pity. I have accepted all of this and will continue to accept whatever my doctor gives me to get better.

I have received food stamps and my cupboards are full. Thank you gma and Brad for paper products. I don't have to use t-shirts to wipe my behind!!! LOL! I saw another case worker on Tues.at Job and Family Services. She was wonderful and is going to try to expedite my case so I can get some cash to pay bills. It's up to the doctors in Columbus when they review my case. Please say a prayer! It could be two weeks or 6-12months before I get any money!!!!

AMEN :)